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09/02/2025 - 'It's been a wheely mixed bag' by David

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Well, we all got through January, didn't we? How was yours? Okay? Unfortunately, mine was a bit pants really. Apart from parkrun on Saturday mornings, I hardly left the house as I need someone to hold on to me when I'm outside now, and Alice and I haven't had any days out, or overnight hotel stays, so it has felt like a long month.  Unfortunately, my mobility and strength have suffered too. Despite feeling really positive up until Christmas, the strength in my legs and arms has dropped off quite remarkably, and we have had to adapt accordingly.  We've had to move all the food to lower cupboards as I haven't got the strength to put the ketchup back or reach for a tin of sweetcorn.  Dressing myself is becoming harder, and is more time consuming. Alice now has to assist me, helping with socks, buttons, pulling on jumpers, and tucking in shirts.  In the bathroom, Alice has to be around when I get in and out of the bath, wet shaving is becoming harder as the dexterity in...
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26/01/2025 - 'MND is not fun' by David

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Motor neurone disease is not fun. I consider myself lucky that my symptoms are progressing slowly in comparison to the average sufferer of my age, and I would like to believe it's due to looking after my body all my life. All that running, football, cycling and swimming must count for something surely? My decline is none the less, very disappointing, and also, so frustrating. I need my stick around the house, and climbing and descending the stairs is not easy now. The other day, Alice and I were in the kitchen and I felt myself falling backwards so I shouted to Alice and she held me up. My legs feel as though they are going to buckle under me, and I know that they will sometime. Until then though, I will plod on until the wheelchair becomes my new best friend.  My hands are weakening too, so things like tucking in my shirt, getting dressed, putting socks or gloves on is not easy any more. Alice and I went to McDonalds this week for a McPlant and I couldn't hold my burger or pic...
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