MND can get in the sea

Life for all of us, is a mixture of highs and lows, the ebb and flow of the tide, the crunchy and the smooth of the peanut butter, and living with Motor Neurone Disease is no different. In the last few weeks, I have been to two football matches, one gig, one gallery exhibition, been on the radio, had a cut throat shave, laughed with friends, scoffed a vegan roast dinner buffet, and enjoyed the cherry blossom and the spring sunshine. Photos incoming!! I've also had a disappointing neuro appointment, lost a fellow MND sufferer, had strangers look at my bottom every day, spoken to a dietician about a bowel regime, and done a poo in my pants.  Alice has had a respite night in a hotel, run 32k in training for the Leeds marathon, stretched and relaxed at yoga, also been on the radio, also had a disappointing neuro appointment, but as far as I know, hasn't also done a poo in her pants.  Our three monthly appointm...

I have been strangely out of sorts for more than four weeks now. Less than the conflict in Iran, but longer than the day Dave Gilmore's black strat sold for $14.5 million and Kurt Cobain's Fender Mustang sold for $6.9 million at auction. Weirdly, I have no idea what is wrong with me. It started throaty, with blocked ears and a productive cough, so I told Alice I had catarrh. She just laughed at me saying that no-one calls it that anymore. Apparently the term catarrh is out of fashion these days.  Unfortunately, this all started on the week leading up to my 60th birthday weekend so I dosed myself up for a party on the Saturday and also for a two night break in London. Despite asking for no presents, I was inundated with birthday gifts so thank you to all my family and friends for the socks, t-shirts, chocolate, a lovely hand painted plate, tickets to a Van Gogh experience, the Mayflower theatre and cinema voucher, a Derby County shirt, a voucher for cocktails, a box of cakes, a ...