MND can get in the sea

It's been a fortnight of appointments, testing my legs and having fun, and as usual, we have lots to report.  Last week, Alice pushed me in the wheelchair to the bus stop and we headed off for my three-monthly respiratory appointment at the hospital and I'm happy to report that all the numbers from various tests came back positively and the doctor was very pleased with the results and slow progression from a respiratory perspective. My cough flow average is now 480 L/min (usual adult range is 440-1200 L/min) so I'm still in the safe range, I've put on over a kilo in weight, my blood pressure, heart rate and oxygen levels were fine, and the sniff test and blood results were equally good. I'm down about 10% from last time on my diaphragm strength but they're not concerned and that they don't want to see me for six months now, which Alice and I were happy about. I popped in to see my ex-work colleagues as usual, and I sat at ...

The blog has not been easy this week and I'm not sure why. It usually flows quite naturally but I didn't feel like it this time so Alice has pitched in and tidied it up as well as adding anything I've forgotten. I still enjoy writing it and I will continue to do so but this week...meh. I had a couple of nights on the island, staying one night with my mum, and one with my daughter Rachel and her husband Max. We went to the woodland burial and tended to the flowers around dad's tree and we sat in the sunshine and remembered how caring and funny he was. Afterwards we had lunch at a new Alzheimers Cafe within a Dementia resource centre which includes chiropodist, hairdresser, and masseuse. Dad used to go to an Alzheimers cafe, and he liked to do colouring in, baking, and making Christmas cards in a friendly environment. It also gave mum some much needed respite, from full-time care.  I also had a doctors appointment to try and determine why I'm getting so m...