MND can get in the sea

The last post in this blog was the beginning of June, so it has been four months since we last updated you all.  I wrote the last post as David was feeling jaded about it, and unfortunately that hasn't changed.  I was also a bit ‘meh’ about it, but I have been watching Kevin Sinfield complete his final challenge and considered how he is still out there raising funds and awareness for the MND community and this is what we set out to do too when David was first diagnosed.  We have a large following and readers all over the globe and whilst we don’t owe it to anyone, we did always say we wanted to document this journey.  The consequence of leaving it this long though, is that this blog is going to feel long and probably quite gloomy.  I have started it off with an incident of me ‘dropping’ David on the floor this week, and unfortunately, it doesn’t really get much better after. The blog was once an outlet, but then David began to feel it had become repe...

Life for all of us, is a mixture of highs and lows, the ebb and flow of the tide, the crunchy and the smooth of the peanut butter, and living with Motor Neurone Disease is no different. In the last few weeks, I have been to two football matches, one gig, one gallery exhibition, been on the radio, had a cut throat shave, laughed with friends, scoffed a vegan roast dinner buffet, and enjoyed the cherry blossom and the spring sunshine. Photos incoming!! I've also had a disappointing neuro appointment, lost a fellow MND sufferer, had strangers look at my bottom every day, spoken to a dietician about a bowel regime, and done a poo in my pants.  Alice has had a respite night in a hotel, run 32k in training for the Leeds marathon, stretched and relaxed at yoga, also been on the radio, also had a disappointing neuro appointment, but as far as I know, hasn't also done a poo in her pants.  Our three monthly appointm...

I have been strangely out of sorts for more than four weeks now. Less than the conflict in Iran, but longer than the day Dave Gilmore's black strat sold for $14.5 million and Kurt Cobain's Fender Mustang sold for $6.9 million at auction. Weirdly, I have no idea what is wrong with me. It started throaty, with blocked ears and a productive cough, so I told Alice I had catarrh. She just laughed at me saying that no-one calls it that anymore. Apparently the term catarrh is out of fashion these days.  Unfortunately, this all started on the week leading up to my 60th birthday weekend so I dosed myself up for a party on the Saturday and also for a two night break in London. Despite asking for no presents, I was inundated with birthday gifts so thank you to all my family and friends for the socks, t-shirts, chocolate, a lovely hand painted plate, tickets to a Van Gogh experience, the Mayflower theatre and cinema voucher, a Derby County shirt, a voucher for cocktails, a box of cakes, a ...