MND can get in the sea

Our Team Baker running tops that I have designed, arrived ahead of next week's London marathon, and they look great! They are light blue, with dark blue and green waves, representing the sea, and have our names printed on the front, and 'TEAM BAKER Pushing Against MND' on the back. They also carry the logos of the organisations that have played a part in getting us to the start line, and of course '#mnd can get in the sea' with a QR code link to our blog. Crazily, they are made from 100% plastic bottles! 5 bottles per garment apparently. Our friend Martin, from Delichon has kindly paid for the shirts, and we are very grateful for all his continuing support.  Alice, Martin, our friend Andy, and my daughter Anna, have all completed their training, and are now tapering. If any marathon runners are reading this, you will know how good that feels. We all met up for the first time last week, and Martin brought our race buggy that he lends out for races.  It...

We have a start date for our house adaptions, which will allow me to live downstairs! We first applied to the council for a grant to transform a downstair toilet into a wetroom and a conservatory into a bedroom about a year ago, and finally, the builders arrived this morning to start the work.  It really is necessary for me now as my mobility and strength has deteriorated quite remarkably in the last few months. Alice had to help me up the stairs last week for the first time, and I can no longer get myself in or out of the bath alone. Alice stands behind me on the stairs and helps me up, and uses a handling belt to lift me out of the bath. At the moment, I can offer some assistance for both activities, but there will come a time when I won't have the strength to lift my arms or legs, so a bedroom and bathroom with wheelchair access will be essential.  Unfortunately I have to report that I have had a pain in my neck for the last few weeks too. I was hoping that it was just a te...