MND can get in the sea

In the weeks since the last blog, we've been busy doing some really worthwhile and positive things, but unfortunately in the days in between, I have been feeling very sad, frustrated and annoyed with my situation.  We will start with a positive – I received the results of the biopsy I had taken of my nose.  I had a persistently bleeding area which looked suspicious of skin cancer, but the results came back as sun-damage only and since having the area removed, I have had no further problems.  This is a relief as it was liable to bleed at every knock and when other people are getting you dressed, they may not always remember to take particular care not to touch it with jumpers etc. Another positive came in the form of a parcel from John which contained a signed Derby County FC shirt!  As Alice took the photo of me holding it up, she noted I was already wearing a Derby top and scarf, so this really completed the look! So, although there is plenty of good, th...

I've had a fortnight of sleeping downstairs in my new bedroom now and it's going very well. Alice surprised me with some Derby County duvet covers and they're keeping me cosy.  It's certainly quiet. Alice's room is at the front of the house and when she asks me if I heard a car alarm going off, a cat scrap, a fox screeching, or an owl hooting in the woods opposite, I say that I didn't. My room is at the back and there is very little noise in the back gardens that overlook my new abode.  With my strength and mobility compromised, the profile bed is very helpful. I can use the handrails to turn over in bed to my preferred foetal position, and I can raise it to assist getting out of bed in the morning. The end of summer rain showers that we've had in Britain have been rattling on the flat roof, which is quite comforting when I'm tucked up in the warmth of my bed. Teddy hasn't slept on the bed with me yet, he just waits until I'm up - che...