MND can get in the sea

One of the activities that I can no longer do is wrap Christmas presents. I hadn't given it a thought as last year, my hands were still strong. I was having such trouble that I asked Alice to film me trying to wrap my mum's present, and it has so far had 3000 views online. With Alice's help, we got the presents wrapped, and I've scribbled on the cards with my feeble little mitts. The end result is not unlike a child's handwriting. It would have made comedy viewing on wrapping day as I had been taking in multiple deliveries over the month of Christmas presents and Alice had been stockpiling all the parcels in my bedroom. Unfortunately they contained some of her presents and I was unable to open any packages so we had to devise system whereby Alice would open a parcel and then hold it out to me with her head turned so as not to see anything. I'd then instruct her what size paper to cut, she'd put the paper up on my table all with her head t...

Before I document the latest two weeks of my MND journey, I want to mention two brave warriors who sadly lost their fight last week.  Kyle, from Pontypridd, was just 14, the youngest person in Britain to be diagnosed with MND. He was diagnosed less than a year ago, and had lived in a hospital bed since January. He showed so much courage, smiling through it all, and playing Connect 4 on his bed with his brother. We have been following Kyle's story on the facebook page 'Kyle's MND story'. Sleep tight Kyle x Andy, an NHS doctor from Hampshire, lost his fight to this cruel disease just a day later.  He and his wife Milli, led a strong media campaign to not just raise awareness, but also to challenge the government to allocate funding to find a medical breakthrough in MND research. Their Facebook page is 'Milli and Andy's MND journey'. Thank you Andy and Milli for fighting for the MND community.  The last fortnight has followed the usual routine of hospital appoi...