05/08/2023 - 'Our thoughts on the MNDA' by Alice

The Motor Neurone Disease Association - our thoughts....

David and I are planning a series of fundraising events to raise money for the MNDA and many of Dave's friends and family members have also taken on challenges to raise money for this charity. 

As vegans, we do understand that the MNDA fund animal testing to find treatments and cures for MND. To be clear, although we'd love to find a cure for this awful disease, we are both strongly against all forms of animal testing. Whether we like it or not, this is the law in the UK at this time. 

However, our decision to raise money for this charity is based on the other services they provide (services we have already used and will also need to use in the future).

They provide a helpline for any kind of support or advice, specialist financial and benefits help from CAB staff, they will pay for Dave's voice banking that would otherwise cost us £££, they loan equipment or provide grants for equipment in the house, they provide a free will writing service, they've funded a specialist nurse in our area, they provide wheelchair support and communication aids and the local branch has a group with regular meetings and guest speakers - all paid for with donations. 

I do hope our vegan friends will support our decision in supporting this important charity and we do also 100% understand if you cannot agree with this decision ✌️#peaceout

Comments

Post a Comment

Popular posts from this blog

11/02/2024 - 'The highest of highs and the lowest of lows' by Alice

Image
Strap in for a rollercoaster - it's been a big, emotional and busy week.  'Monday Monday... so good to me'. Well, not really. I'm doing the blog this week and that's because David just couldn't face it and needs a week off. I'm sure our regular readers usually feel reassured that despite his disease, he's upbeat and positive but this week, started with him feeling down (and that's OK!). So was there a trigger to this low mood? Probably yes. And that was our check up with his neurologist at the hospital. We get a 30 minute appointment and as usual, we were joined by Clare, the MND care co-ordinator for the area. The consultant starts with the same question he asks every time - 'what's changed?' and we have deteriorarion to report. David's hands are becoming weaker and every day tasks are becoming harder (if not impossible). Not only that, his arms are failing him so his overall strength is weakening. He had been packing up his percus...
Read more

18/02/2024 - 'My running days are finally over' by David

Image
In a week where both Alice and I really wanted to rest and relax, we unfortunately did neither. Alice is suffering from a bad back, and I was still recovering from my running and musical escapades last weekend, so the thought of sorting, boxing, and transporting to the new house wasn't something to look forward to. With the help of family, including Fin, who used all his lego building experience to help assemble units and desks, we have made a good start though. Unfortunately, my leg strength has deteriorated and on Monday I walked back from the new house to our old house on my own as Alice and Fin were busy assembling furniture and after only a few minutes of walking, I felt unstable on my feet, and I was lifting my left foot in a strange manner as I walked. Admittedly, I didn’t have my stick, or my shopping trolley, or the hand of a good woman to hold onto to steady me, but it was very disappointing and left me in a low mood. Amidst all the emotions and household possessions arou...
Read more

04/02/2024 - 'MND takes everything...' by David

Image
It's 12 months since my 'Theory Of Everything' moment. Anyone who has seen the film with Eddie Redmayne playing the part of Stephen Hawking, will remember the moment when he falls to the ground with a thud and his world changes forever. Unlike a 120 minute film, my story is thankfully told in real time and in the last year, I have come to terms with my condition and, in fact, embraced life ever since. It's impossible to determine the actual date of my first symptoms as Alice had noticed twitches in my legs, and I had been getting leg cramps for over a year, but my fall while out running last January, training for the Brighton marathon was definitely a turning point, and from that moment on, we both realised that another marathon was beyond my capabilities, and that I should get my body seen to by professionals. We both hoped it was leg related, but unfortunately, as the tests, went on, it was becoming obvious, that it was neurological, and I was diagnosed within months....
Read more