MND can get in the sea

One week on... the most devastating and exhausting week of our lives.  Firstly to thank everyone for the most overwhelming outpouring of love and support. Not just for David, but also for me. All our friends and family have been amazing 🥰 We've been through every emotion imaginable this week, from despair and denial and now acceptance. Our plans for the future may have been cut short but that doesn't mean that the future we do have can't be full of laughter and fun! And that's what we will do! We face this united and with positivity. We still have time and we will do as much as we can, while we can. And then adjust. And whilst things feel unsettled at the moment, what we do know with absolute certainity is that we will be together on this journey. In sickness and in health, we will be there for each other every step of the way 💚💚

Thank you so so much for all your kind words and wishes following my diagnosis this week. It really is a strange feeling being given such disastrous news and obviously I have felt negative emotions like anger, frustration and hopelessness but amazingly I also feel confident, determined and postive. I have the chance to make every day count with my family and friends and I now look at life from a different perspective.  As Alice and I walked home from just hearing the worst news possible, it started to rain and and minutes later it turned to a torrential downpour. As people turned their collars and scurried along for cover, I slowed down, turned my face up to the sky and let it soak into me and it felt good, really good!  There will come a day when I will never feel the rain, sun, wind or snow on my face ever again so until that day comes I will grab and embrace everything with a smile x

I have some terrible news to tell I'm afraid. I have been diagnosed with Motor Neurone Disease.  For the last three years I have experienced a bilateral ache in my groin that comes and goes and leg cramps at night and have been to my GP twice, had physio and been referred to a long covid clinic as that was what I was told that it probably was. As they were the only symptoms that I was having and with the knowledge that I had contracted Covid 19 in the first wave of April 2021, this diagnosis was entirely plausible.  My running ability has deteriorated from being able to run a marathon before I contracted Covid, to just about being able to run a half marathon a year later, then struggling to finish a 10km race in April of this year. You may remember I fell while out running in January. I was trying to train for Brighton Marathon as I had a place prior to Covid 19 pandemic and had deferred it twice. I was nearly home from a long run when I fell and a kind off-duty midwife picked me o